This is a fraction of what I used to do when I wasn’t on dialysis, but I keep as active as I can. I’m only using #steps as a metric to see how good my treatment is going and to make a decision on any given day whether to have standard Haemodialysis or BBM Haemodialysis (variable rate HD, where the computer determines what rate it can pull fluid off of you; rate goes up if you can safely pull off more fluid (ml)/ hour and dynamically adjusts downward as appropriate. In effect the dialyzer computer monitors your hydration state continuously. When I worked, I would deliberately park my car about 2 miles away from my lab. That plus working on my feet all day, I would easily get over 25,000 steps/day. Now on medical retirement, not so much. But as long as I can keep walking, I’ll keep walking. Even if it is only 6,000 steps/day.
Special bonus pic visually describing what I’m talking about. Not every patient can withstand more aggressive fluid removal b/c of other vascular/cardio issues. They would have a lower targeted fluid removal rate. B/c I worked in renal Pharmacology and I ask a lot of questions, they allow me to press buttons and fiddle around on the controls as long as I don’t do certain things. The sudden change in the slope of the curve at ~ 2hr 50m is a good indication that the maximum amount of fluid that can be removed without adverse effects (low blood pressure, sweating, ringing in the ears, nausea) is approaching or getting close. If the curve falls into the red zone, I’m usually feeling icky.
That’s why I usually bring a coffee or Red Bull with me into dialysis > for quick hydration, and to avoid going into caffeine withdrawal (all the caffeine circulating is stripped out w/in 15-20 minutes > garanteed headache). Oddly enough, Red Bull is safe b/c no Phosphoric Acid.
Tom