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What's Your Ailment?
- Thread starter Huntn
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ACL replacements in both knees, the result of soccer injuries on turf fields. The first happened in 2004, the second in 2006. I haven't had any structural issues with them since, but they do make all kinds of noises and ache if I've been on my feet for too long.
Sorry to hear you're having a rough time with things as of late. I sincerely hope you find the treatment you find necessary and deserve in order to attain some level of comfort and solace in life. You did an excellent job describing the daily struggle you endure. Don't give up hope on being able to manage your condition. You will find many people in life suffer with chronic, incurable conditions. Be happy that your condition can be managed to some level, as there others out there with terminal illness. I encourage you to be optimistic about the future and to seek out the help that you need.
Sorry to hear that
. Luckily the medical field is making leaps and bounds in treatment.I used to be a big soccer player growing up. I always hated those turf fields and they seem to be more and more prevalent. With ACL's it seems to be the trend when one goes, so does the other sometime there after.
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Moderate to profound hearing loss. I retained 75% clarity which is a rarity since typical retained clarity is 10 to 25%. Began losing my hearing at age 6 years old. My doctor then told me I would be completely deaf at 18 years old. I am 19 years old now, and my hearing is the same. Now I could do a lawsuit for the "lols". I have conductive hearing loss. It doesn't stop me from understanding speech as I said I retain 75% clarity; however, if you speak to me in a Spanish or Chinese accent. It's harder for me to understand. My hearing loss doesn't stop or prevent me from learning Russian though!
One of my biggest pet peeves and annoyance is that I have that many people do not understand: If I say, "what," "I'm sorry," "come again," or "Can you repeat that," they sigh in annoyance, roll their eyes and tell me "never mind." It's not that I'm not listening or me not hearing you, it's a simple matter of can I understand you. I do not like pointing out that I am hearing impaired as it makes me extremely self-conscious that I do not have a good basic human sense when the person I am talking to has one that works like it is suppose to. I'm typically offended if they're a friend of mine and says never mind or forget it to me because I want to know what they want to say to me so I feel like I'm not worth their time to have an understanding of them. This mainly falls into me saying, "Don't call me unless it is urgent or an emergency. Text me."
As for dealing with customers at Sprint? Well, if I don't understand them well, I just tell them I'm hard of hearing, please speak clearly and then I look at their lips to read it as I'm getting much better at reading lips. I tend not to do it to friends or family.
P.S
I'm not sure if hearing loss is considered an 'ailment' or a 'disability' from my experience with people.
One of my biggest pet peeves and annoyance is that I have that many people do not understand: If I say, "what," "I'm sorry," "come again," or "Can you repeat that," they sigh in annoyance, roll their eyes and tell me "never mind." It's not that I'm not listening or me not hearing you, it's a simple matter of can I understand you. I do not like pointing out that I am hearing impaired as it makes me extremely self-conscious that I do not have a good basic human sense when the person I am talking to has one that works like it is suppose to. I'm typically offended if they're a friend of mine and says never mind or forget it to me because I want to know what they want to say to me so I feel like I'm not worth their time to have an understanding of them. This mainly falls into me saying, "Don't call me unless it is urgent or an emergency. Text me."
As for dealing with customers at Sprint? Well, if I don't understand them well, I just tell them I'm hard of hearing, please speak clearly and then I look at their lips to read it as I'm getting much better at reading lips. I tend not to do it to friends or family.
P.S
I'm not sure if hearing loss is considered an 'ailment' or a 'disability' from my experience with people.
I have a 60% hearing loss. I'm in my 60's and played in a rock n roll band starting at age 12. Diagnosed at age 25 but ignored it and at age 40, my brother was so tired of repeating himself that he made me go het hearing aids lol.
There was no one to warn that we all needed to use ear plugs at age 12. So I understand your comments above all too well. I have a 3000 dollar hearing aid for each ear and it helps me to understand people talk if I'm less than 4 feet away from them and in a quiet room, and no one seems to understand or care. At large gatherings the noise is amazing / deafening because the hearing aids amplify every tiny sound and amplify it to the level of the people talking to me making everything hard to understand. And the people that talk in a whisper for dramatic effect... Argh.
It is a disability. I can use the earbuds on my phone if I want to truly converse with someone on the other end, so it is a hassle taking out the 2 hearing aids, keeping them safe while having to hurry and place the earbuds and plug them in my phone, lol. Yup, a real pia.
In all seriousness would you have worn them at age 12 if you were warned? I don't know too many pre-teens/teens that have a long range outlook on their health and well being.
Probably not, but the band was a good one. We played many gigs making money and were actually managed by an adult they should have (and could have) made us, but the medical world was not conducive of warning about hearing loss as it is today. I'm still a musician and still play frequently. All of the youngsters now do wear hearing protection while playing. It took many years of playing to loose my hearing.
But yes, my own children do not heed my warnings of listening too loud while driving in their cars, and they have had to put up with my hearing loss.
Don't get me wrong, I'm not knocking you - I would have scoffed at the notion of ear/hearing protection back in my adolescent age.
No, I didn't- point being that people in general can't see a hearing disability so they do not perceive it as a disability which makes it difficult for them to accommodate one with the hearing loss. A hearing disability is most definitely a hard disability to live with and for others to cope with.
The problem is that others can't immediately see evidence of hearing impairment (unless hearing aids are very clearly visible), with the result that if someone says something and the hearing-impaired person doesn't realize that they're being addressed, the other person thinks that the H-I person is deliberately ignoring them and being rude. And, yes, others get impatient, too, when asked to repeat what they have just said.
Hearing aids can only go so far with regard to helping, especially for those with sensorineural loss, as perception is blurred by distortion in sounds and speech. Definitely it is difficult in a crowded, noisy environment to hear what someone is saying, or to understand it.
@golden Dust: since you have conductive loss, you may want to consider looking into a bone-anchored hearing system, which provides the needed amplification and can bring the hearing to an almost-normal level. The system bypasses the ear canal, carrying sound directly to the bone and to the cochlea. If your cochleas are patent and intact, you could really benefit from one or a pair of BAHAs. There are a couple of companies which offer this: Cochlear (http://cochlear.com) and Oticon. Check it out, talk with your doctor and your audiologist......
Hearing aids can only go so far with regard to helping, especially for those with sensorineural loss, as perception is blurred by distortion in sounds and speech. Definitely it is difficult in a crowded, noisy environment to hear what someone is saying, or to understand it.
@golden Dust: since you have conductive loss, you may want to consider looking into a bone-anchored hearing system, which provides the needed amplification and can bring the hearing to an almost-normal level. The system bypasses the ear canal, carrying sound directly to the bone and to the cochlea. If your cochleas are patent and intact, you could really benefit from one or a pair of BAHAs. There are a couple of companies which offer this: Cochlear (http://cochlear.com) and Oticon. Check it out, talk with your doctor and your audiologist......
@golden Dust: since you have conductive loss, you may want to consider looking into a bone-anchored hearing system, which provides the needed amplification and can bring the hearing to an almost-normal level. The system bypasses the ear canal, carrying sound directly to the bone and to the cochlea. If your cochleas are patent and intact, you could really benefit from one or a pair of BAHAs. There are a couple of companies which offer this: Cochlear (http://cochlear.com) and Oticon. Check it out, talk with your doctor and your audiologist......[/QUOTE]
Thank you, but no thank you. You see, I am not eligible for cochlear implants. Cochlear implants actually will make people sound monotone/robotic. This would wreck havoc on me and I do not want to experience such thing. I know what a cochlear implant is, I've explored that option. I refuse to destroy my hearing voluntary to get such implant that will make sounds sound unfamiliar. It's something I will not do.
Thank you, but no thank you. You see, I am not eligible for cochlear implants. Cochlear implants actually will make people sound monotone/robotic. This would wreck havoc on me and I do not want to experience such thing. I know what a cochlear implant is, I've explored that option. I refuse to destroy my hearing voluntary to get such implant that will make sounds sound unfamiliar. It's something I will not do.
My hearing aids has a feature that focus on sound from straight ahead. This is useful when in loud environments or places. By clicking the button, it mutes background noises and allows me to focus on conversations in restaurants or general loud places. Mm, my hearing aids did not cost that much at all, but I'm glad you understand what I've experienced because you've experienced it, too. Many people do not understand our difficulties that we face in our social and perhaps even work lives.
Man I had the worst acid reflux for years. To the point where I would cough and choke so hard from it I would pass out. Finally got a prescription of aciphex. Its like a whole new world.
Thank you, but no thank you. You see, I am not eligible for cochlear implants. Cochlear implants actually will make people sound monotone/robotic. This would wreck havoc on me and I do not want to experience such thing. I know what a cochlear implant is, I've explored that option. I refuse to destroy my hearing voluntary to get such implant that will make sounds sound unfamiliar. It's something I will not do.[/QUOTE]
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No, the bone-anchored hearing system is NOT the same as cochlear implants, and you're quite right, that if you have a conductive loss, you're not a candidate for cochlear implants. However, you MIGHT be a candidate for bone-anchored hearing aids, though. The BAHA system is specifically for those with conductive loss due to atresia/microtia, "glue ear," single-sided deafness, acoustic neuroma, etc. Check out the website I mentioned -- yes, I know the name "cochlear" is a bit misleading but the company is named that because they also do provide cochlear implant devices as well as BAHAs.
The reason I am so knowledgeable about BAHAs is that I wear them, and have been since 2001. Prior to that I wore a standard bone conduction aid (headband and all that). The value of the BAHAs to me was not only improved hearing -- direct sound right to the bone, no interference from layers of tissue -- but the fact that I could at last have the benefit of bilateral hearing, and it DOES make a difference. Seriously, check it out -- you'll thank me later if you find that this is a feasible option for you.
An update to my post about having Multiple Sclerosis. It seems I have Fibromyalgia as well, diagnosed in August. I am having soooo much fun! lol.. If I can't laugh about it than I may as well just lay down and die, but I choose to laugh.
It is what it is. The hardest part is learning my new "normal" which changes quite a bit. But, it's not going to kill me so I will learn and move forward. And hopefully along the way show others that you can have a positive attitude in a thunderstorm. Just for the record, I do have my depression days.
I was going to say that but I wasn't sure if you were laughing in despair; however, I do concur that we should just laugh every now and then. I do laugh at my own hearing and even make jokes about it. My aunt called me and invited me to Water Country, and I told her, "No, I can't hear without my hearing aids. I don't want to go into water completely absent of sound. It'll feel too lonely for me and it reminds me I can't exactly enjoy what the majority of people can. You wouldn't take a blind person to a zoo would you? "Hey! I bet you can hear the lion but you can't see it, huh?""
Here's a unique one for you guys: shoulder injury due to a flu vaccine. It turns out that if the nurse at the free flu shot clinic jabs you too high and too deep, she actually injects the vaccine INTO your shoulder JOINT.
It turned into a full blown frozen shoulder that I just got surgery for in August. Recovering well now, but that was the most expensive free flu shot I have ever gotten. I am filing a claim with the vaccine injury board now, hopefully I will get some of those costs back.
Not getting another flu shot this year. Ugh. Be careful when you go pharmacies and free clinics where they are giving the shots en mass.
My only other long term ailment is fibro which is well controlled. Probably made the flu shot injury even worse since frozen shoulder is common with fibro.
It turned into a full blown frozen shoulder that I just got surgery for in August. Recovering well now, but that was the most expensive free flu shot I have ever gotten. I am filing a claim with the vaccine injury board now, hopefully I will get some of those costs back.
Not getting another flu shot this year. Ugh. Be careful when you go pharmacies and free clinics where they are giving the shots en mass.
My only other long term ailment is fibro which is well controlled. Probably made the flu shot injury even worse since frozen shoulder is common with fibro.
Wow, that's a tough one. I have learned over the years with my fibro that when I really pay attention to getting enough sleep, eating well, and staying lightly active that it really helps control my fibro symptoms. I still get flares, but if I am getting enough sleep most of the time they are much reduced. It's a catch-22 sometimes though, as fibro messes with your sleep brain waves making you get less restful sleep overall.
Stay positive and take care of yourself, and I hope you can get to feeling better.
I recently read an article last year or two about this. That's a very rare circumstance, usually associated with poor injection technique, often injecting into the synovial tissue and eliciting an profound immune response. If I remember correctly ~30% had to have surgery to recover. That is why it is recommended to inject into the thickest, most central area of the deltoid. An IM injection in the deltoid is not rocket science.
I'm not a retail pharmacist, but as a PharmD I've volunteered at many clinics giving vaccines. I've never witnessed such as case- either myself or amongst other healthcare workers. I wouldn't dissuade people from getting flu shots because of this risk.
I just looked it up- between 2011 and 2015 there were 112 vaccine injury claims, 50%+ paid out within the past year. I think part of this has to do with increased awareness (and perhaps people trying to make money). Anyways, over 115 Million Flu Vaccines are administered yearly. Your risk of injury are very, very low. Comparatively there are usually ~4,000 Flu deaths yearly
Laughter is the best medicine. As long as you keep your sense of humor, you'll make it.
After all my chemo and surgery, I finally broke down on the way to a radiation appointment one day. Getting the walker out of the car was the straw that broke the camel's back. My radiation oncologist put me on Celexa, and it has helped incredibly. Staying positive can be a chore, but a little help works wonders.
Oh, I don't want to discourage anyone from getting the flu shot, it is very rare. My surgeon says he only sees a couple of cases a year that react as aggressively as I did.
I guess my only caution is if it seems like they are prepping the shot area really high on your shoulder vs years past, speak up and ask about it.
I will say the nurse who did mine has no idea she injured me which is unfortunate. The only indication that something was wrong during the injection was I felt very little pain vs years past, and there was quite a bit of blood that she had to wipe off. I had no way of contacting them after the clinic, although I did try, as they were a third party company that my work hired to come in and do the clinic. So it's possible that this could be happening to folks and it doesn't get back to the original healthcare worker at all. I do know one other person who ended up with a shoulder injury after our work clinic, but he never reported it anywhere and hasn't gotten any treatment yet.
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