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What's Your Ailment?
- Thread starter Huntn
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Thanks for the reminder, I actually have 2 different pairs of them already
One that is lighter, more of a walking pair, more open and easier to get into with toes.
But it's definitely possible to run with those too.
Just tried it on, but a bit to tight for toe as it is.
And then I have another pair that is more tight on the foot, adjusted exactly for running.
Might use them more when the toe gives a go.
Yes, there is medicine to manage the seizures, however
Thanks for the support. I don't want to turn this thread into being all about me, my neurological life is actually kind of boring compared to others like me or any other person with a neurological condition. So if you have questions, feel free to send me a private message. If there are anyone else out there like me who has hydrocephalus, feel free to contact me via-private message.
Thank you, would you like to get private messages? That is if I don't get requests to do so on this particular thread. Though, in eleven days I will be six months away from my goal of 25 years with my current shunt and pump, however, I recently passed my nineteenth year of ever being in an operating room. (The little tube the forks off got clogged, however, my Neurosurgeon had trouble replacing it, so I had to go back a few days later and he used a special technique (I assume) to get it to go on correctly.
Thanks for the support. I don't want to turn this thread into being all about me, my neurological life is actually kind of boring compared to others like me or any other person with a neurological condition. So if you have questions, feel free to send me a private message. If there are anyone else out there like me who has hydrocephalus, feel free to contact me via-private message.
Original thread here: https://forums.macrumors.com/threads/blepharospasm-what.2124286/
Glad you have sorted this out. I think it is a good heads up as I’ve not heard of this and I replied in a thread devoted to discussing illness as a cross reference.
An achilles injury sounds pretty awful.
And you’re right - things happen. Problem is when they happen to me, it’s nearly always my fault.
I cringe sometimes when I think back on the times that a split second or inch difference could have put me in very serious trouble, or death.
I’d done a lot of mountain bike riding in the very early 80s in Moab, when you could still ride and maybe see only one or two other people riding mountain bikes in a day. I stopped riding (work interfered) much, then completely. I took it up again twenty years later, and bikes had improved a lot. Full suspension and disk brakes! Woo Hoo! I even entered the local citizen race circuit (at the tender age of 50 something).
Late one afternoon I was riding some decent single track from a nearby ski area to my house, and made a very rookie mistake of grabbing the front brake as I descended and went over root - with a drop of about 12”. That was enough to send me, Superman-style, headfirst into a tree. The tree won.
As it turned out, I was alone and in a small canyon where cell service was nonexistent. I knew that I had screwed up pretty badly. I got out, but it wasn’t pretty.
Surgery the next morning put C4-C5 together with a graft of bone from my hip and a titanium plate. Wearing a C-Collar for six weeks after that was a pain, but a good reminder of how close I came to having my two wheels side by side instead of one in front of the other. Or worse.
You survived. So how are you doing today? Troubles? Lessons?
For the record that achilles injury wasn't the worst that happened to me, if you replied to it as a reference
I had a car crash at 20 when I actually DID DIE on the hospital afterwards. A so called NDE (near-death-experience) but it was way more. I was dead, but returned.
At a time when people didn't believe in these things, when it was really weird talking about it.
I still prefer not to talk a lot about it. I don't need to today.
But, some dude found me in the snowstorm that was going on. I was stuck in the car. But could walk out of it and the guy drove me to the hospital. There the docs did some mistake and injected some contrast in some wrong way. That had to do with the shoulder.
Heart stopped for over 6 minutes. I was declared dead.
But God and me had other plans
Still a young body. And a different spiritual path began. Much too long story to get into any further here though.
I still have a shoulder injury, after how I was stuck in the car.
It took me into yoga. It keeps it strong and supple enough to live with.
When I don't do my yoga, I gets more trouble with it.
Things happen out of a reason. To bring life-lessons to surface.
No, not as a reference, your post just got me thinking about injuries.
But six minutes. Declared dead. Holy crap!
You obviously weren’t done yet.
As for troubles with my neck, nothing that I’d consider a problem. It’s pretty much pain free, but a bit stiff at certain angles. I mostly notice it changing lanes driving (since I tend to actually look over my shoulder) or pulling into an intersection that’s at a severe angle. I also lost about 10% of the strength in my right hand. Overall, pretty insignificant, considering.
The takeaway for me from that and other adventures was to relax, slow down, and pay attention in whatever I’m doing. Mindfulness. And I find that mindfulness is harder to maintain than it appears to be. At least for the way I’m wired. But, when I remember to practice it, I often feel a sense of gratitude, if that makes sense.
I dont do yoga, but I meditate (ok, meditation is arguably a form of yoga, I heard way back when). And as you suggest, I’m better doing it than not.
Glad you made it. Did you ever talk to the dude that found you, afterwards?
But six minutes. Declared dead. Holy crap!
You obviously weren’t done yet.
As for troubles with my neck, nothing that I’d consider a problem. It’s pretty much pain free, but a bit stiff at certain angles. I mostly notice it changing lanes driving (since I tend to actually look over my shoulder) or pulling into an intersection that’s at a severe angle. I also lost about 10% of the strength in my right hand. Overall, pretty insignificant, considering.
The takeaway for me from that and other adventures was to relax, slow down, and pay attention in whatever I’m doing. Mindfulness. And I find that mindfulness is harder to maintain than it appears to be. At least for the way I’m wired. But, when I remember to practice it, I often feel a sense of gratitude, if that makes sense.
I dont do yoga, but I meditate (ok, meditation is arguably a form of yoga, I heard way back when). And as you suggest, I’m better doing it than not.
Glad you made it. Did you ever talk to the dude that found you, afterwards?
I do meditation too. It separates out what’s real, and what’s not
A lot is just not worth giving our time to.
No, that guy disappeared. He just left me at the hospital.
Probably owe him my life. But as he didn’t want the credit, I consider I owe God my life. I do that regardless of whatever anyway
With that snowstorm going nobody would’ve found the remains of me until days later.
I neither saw the car afterwards. My brother did with the police. He said I didn’t wanted to.
They didn’t understand how I could’ve walked out of it alive.
The car was just scrap.
Your neck and hand could probably benefit from yoga, check it out.
As you already do meditation, not so far off.
A lot is just not worth giving our time to.
No, that guy disappeared. He just left me at the hospital.
Probably owe him my life. But as he didn’t want the credit, I consider I owe God my life. I do that regardless of whatever anyway
With that snowstorm going nobody would’ve found the remains of me until days later.
I neither saw the car afterwards. My brother did with the police. He said I didn’t wanted to.
They didn’t understand how I could’ve walked out of it alive.
The car was just scrap.
Your neck and hand could probably benefit from yoga, check it out.
As you already do meditation, not so far off.
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Hopefully you are back to normal physical abilities.
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During your NDE, did you have an out of body experience you can describe... or want to describe? No hard feelings if you don’t, but I am I intrigued by such things.You survived. So how are you doing today? Troubles? Lessons?
For the record that achilles injury wasn't the worst that happened to me, if you replied to it as a reference
I had a car crash at 20 when I actually DID DIE on the hospital afterwards. A so called NDE (near-death-experience) but it was way more. I was dead, but returned.
At a time when people didn't believe in these things, when it was really weird talking about it.
I still prefer not to talk a lot about it. I don't need to today.
But, some dude found me in the snowstorm that was going on. I was stuck in the car. But could walk out of it and the guy drove me to the hospital. There the docs did some mistake and injected some contrast in some wrong way. That had to do with the shoulder.
Heart stopped for over 6 minutes. I was declared dead.
But God and me had other plans
Still a young body. And a different spiritual path began. Much too long story to get into any further here though.
I still have a shoulder injury, after how I was stuck in the car.
It took me into yoga. It keeps it strong and supple enough to live with.
When I don't do my yoga, I gets more trouble with it.
Things happen out of a reason. To bring life-lessons to surface.
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I can't hear anymore. Too many years of loud music and playing in bands. Now a suffer. The problem is the idea of getting a hearing aid depresses me. The thought of wearing glasses and a hearing aid makes me feel like I am some sort of cyborg. I don't like wearing external apparatuses.
Funny thing is my hearing seems to be worse when my wife is talking to me. Go figure.
Funny thing is my hearing seems to be worse when my wife is talking to me. Go figure.
Might be wax or something else. ENTs are like ophthalmologists or dermatologists. Most are okay, some are terrible, few are exceptional. I've been listening to loud music for decades in open air, cans or in-ear buds. My hearing is still excellent. I don't even hunt with ear protection. I do at the range.
Sounds like you lost your high pitch frequency hearing as I also cannot hear high pitch. About 90% of the females voices are high pitch and hard for me to hear. Tinnitus on top of that doesn't help matters either.
No, I have no personal need to have any in depth talk about it, at this point. That ended a few decades ago. I’ll evaluate the matter if I get a book contract or something, for more reasons then just the NDE as itself
There are plenty of stories and sources that discuss those things online today where you can feed your interest.
Really?
While women's voices run the full range of pitch - some higher, some lower, some (as in a number of Asian cultures) somewhat culturally determined preferences, some other factors may also come into play.
One is that over time, as they age, paradoxically, women's voices tend to deepen (which should render them easier, not more difficult - to hear), and - apparently - are now, on average, irrespective of age, women's voices are pitched at around half an octave lower than they were a quarter of a century or so ago.
Pretty much, thanks. As I mentioned in a followup post, I lost about 10% of the strength in my right hand. I rarely notice it, but sometimes, like opening a particularly difficult bottle or jar, I switch to my left. It’s an odd feeling, since I’m right-handed.
Probably an age thing, but we have those rubber grips now for the top of jars. Makes a big difference.
Lately I have been doing exercises to combat the condition known as tennis elbow, although I don’t play tennis that results in less gripping power of the effected hand.
I have to admit I was being a bit facetious. The stereotype being that men never listen to their wives.
Actually it is pretty equal across the spectrum. What is interesting is I tend to understand people with accents better.
I definitely have lost hearing. It is difficult to deal with being a musician and a lover of music. I rely on my wife to be my interpreter when I don't hear someone talking to me. I think I am just going to have to get over the hang up and get hearing aids.
I also have developed tennis elbow, and it has resulted in quite a loss of power in my right hand (and yes, I am right handed, although, increasing, for actions that require strength, I find myself using my left hand a lot more); what exercises have you found of benefit?
I don’t know a lot about hearing aids, but have gleaned from a friend who spent too much time standing in front of 8’ tall speakers in her youth, that hearing aides seem to be overpriced and difficult to find? It seemed odd when living in a large metropolitan area, they ended up driving 3 hours away to another city to get some. Not sure what that was about, price or a brand they wanted.
I suspect that this isn't quite such a problem in the state funded or state subsidised public health systems of western Europe; my mother was able to get quite good hearing aids (courtesy of the state), it is just that she refused to ever wear them.
Likewise, a German friend was able to recommend relatively recently developed and very discreet (but extremely good) examples of hearing aids available in Germany, some of which were, yes, privately funded.
Actually, in the US, a big problem is that most insurance companies and Medicare will NOT cover hearing aids. There are exceptions to this, of course, but it does put a financial burden on older people, who are usually the ones in need of hearing devices. There are indeed some amazing innovations in hearing devices these days, including what I wear (bone-anchored sound processors), and very tiny discreet in-ear-canal hearing aids, as well as devices which are controlled by remote control that a user can carry in pocket or purse, and so on.....
An unfortunate situation is that sometimes people fall for eye-catching adverts, a slick sales brochure and a fast-talking salesman's promotion rather than going to a trustworthy audiologist and audiology clinic, then wind up dissatisfied because they still aren't able to hear very well in spite of having spent thousands of dollars.... Also, too often many people have unrealistic expectations of what a hearing aid can do for them. It is NOT going to be able to totally restore function and the ability to hear the way one did in the past. However, they can assist hearing by boosting the sound levels so that one isn't always saying, "what? How's that again?" and so on.
An unfortunate situation is that sometimes people fall for eye-catching adverts, a slick sales brochure and a fast-talking salesman's promotion rather than going to a trustworthy audiologist and audiology clinic, then wind up dissatisfied because they still aren't able to hear very well in spite of having spent thousands of dollars.... Also, too often many people have unrealistic expectations of what a hearing aid can do for them. It is NOT going to be able to totally restore function and the ability to hear the way one did in the past. However, they can assist hearing by boosting the sound levels so that one isn't always saying, "what? How's that again?" and so on.
The friend I mentioned a couple posts ago has a love hate relationship with her hearing aides. She won’t see movies in the theater, but I’m not sure if that is with or without them.
Sometimes the volume in movies can be unbalanced -- either too loud or sometimes too soft. I usually find myself fiddling with my aids in a movie theatre or a concert hall. In watching a film, if someone has hearing difficulties and also tends to lipread, if an actor turns away while speaking the viewer might not know what was said. Dialogue spoken too rapidly can be problematic, too. Some movies seem to favor dimly-lit scenes, which again can be problematic for those with hearing problems. Hearing aids are not good at sorting out sounds and muting sounds which are undesired, so if someone is seated in front of someone who is loudly rustling a bag or candy wrapper or rattling the ice in his or her drink, that can be very annoying!
Some people don't like hearing aids because they cannot correct sound distortion, they only amplify it. Depending upon the type of hearing loss, this may be a real issue for the user. Other people don't like the feel of having something in their ear, whether it be ear molds or something in the ear canal. Still others, as was mentioned earlier in this thread, don't want something external on their head, whether it be hearing aids or glasses -- heaven forfend, both!