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Lioness~

macrumors 68040
Apr 26, 2017
3,395
4,227
Sweden
Toe stuff is definitely the worst. I Brooke my big toe once. It sound up shattering. Took months to heal, and I was miserable on crutches the whole time.

My toe is working perfectly fine now. But it's still a bit swollen and a bit sore, especially if I bump into something with it.
Totally recover with this toe will take its time.
So I understand that it took months for your toe after you broke it.

Toe still don't like shoes very much. Some works better then others though.
So I try to do most things barefoot, if I can.
I won't push toe into any spinning shoes this summer, I'm pretty sure of.
But running barefoot on treadmill is totally wonderful.
Why haven't I done that before?
Might take barefoot-running outside too when weather allows. Rain, rain and lots of great work anyway now, so.

Back to basic summer, getting closer to Mother Earth, again.
Nothing happens without a purpose :)
 

Gutwrench

Suspended
Jan 2, 2011
4,603
10,550
Toe stuff is definitely the worst.

Except for a minor issue in college wrestling I’ve not had any toe problems. I have my share of orthopedic issues, but I think the worst is shoulder or hand problems (of which I’ve have neither). I’ve spent a lot of time in rehab and I pity those bastards. One needs their shoulders and hands in about everything...and if they are hurting...life just sucks.
 
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Lioness~

macrumors 68040
Apr 26, 2017
3,395
4,227
Sweden
If you're talking about bad ****, what's the worst injuries???

In that case I want to upvote Achilles tendon rupture as a really shi**** thing.
Happened once when I played badminton.
Really, really painful and took also a long time before I was healed.

Was way beyond this little toe***trouble.
Worse then knee-surgeries too.
I've been living an athletic life. Sh*** happens.
 
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a-m-k

macrumors 68000
Sep 3, 2009
1,546
132
I've got hydrocephalus and some sort of seizure disorder. However, I no longer have a neurologist or neurosurgeon to try to figure out what exactly the spells I get are. :( He retired and he was AWESOME!
 
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Gutwrench

Suspended
Jan 2, 2011
4,603
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I've got hydrocephalus and some sort of seizure disorder. However, I no longer have a neurologist or neurosurgeon to try to figure out what exactly the spells I get are. :( He retired and he was AWESOME!

I’m sorry to read this. Are they under reasonable control?
[doublepost=1529276814][/doublepost]
If you're talking about bad ****, what's the worst injuries???

In that case I want to upvote Achilles tendon rupture as a really shi**** thing.
Happened once when I played badminton.
Really, really painful and took also a long time before I was healed.

Was way beyond this little toe***trouble.
Worse then knee-surgeries too.
I've been living an athletic life. Sh*** happens.

I’ve hear Achilles injuries are bad. I’ve not had that either. Sorry to hear this too! Especially as a former athlete. I can imagine the rehab is rough as heck.. do you have good range of motion? Is there pain once the injury is fixed and stationary?
 
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Lioness~

macrumors 68040
Apr 26, 2017
3,395
4,227
Sweden
I’ve hear Achilles injuries are bad. I’ve not had that either. Sorry to hear this! Especially as a former athlete too. I can imagine the rehab is rough as heck.. do you have good range of motion? Is there pain once the injury is fixed and stationary?

Pain was pretty tough. Was sooome time ago. Think rehab was pretty painless, but long, even for an athlete. I was plastered for quite awhile. Don't remember exactly, 6-8 weeks.
The pain was horrible just in the acute situation. It passed after 1-2 days.
And I stopped playing badminton after that. I was not competing in it, just played with friends. Some of them were really good though.
Never had any further trouble with it fortunately.
I was full recovered after it was healed.
 
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Gutwrench

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Jan 2, 2011
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Pain was pretty tough. Was sooome time ago. Think rehab was pretty painless, but long, even for an athlete. I was plastered for quite awhile. Don't remember exactly, 6-8 weeks.
The pain was horrible just in the acute situation. It passed after 1-2 days.
And I stopped playing badminton after that. I was not competing in it, just played with friends. Some of them were really good though.
Never had any further trouble with it fortunately.
I was full recovered after it was healed.

I’m glad to hear you’re recovered. So your ROM is good? Does it give you any grief now? Rehab was painless? Wow! If you don’t mind, what was your sport?

(I played recreational badminton in China...they take it seriously.)
 
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Lioness~

macrumors 68040
Apr 26, 2017
3,395
4,227
Sweden
I’m glad to hear you’re recovered. So your ROM is good? Does it give you any grief now? Rehab was painless? Wow! If you don’t mind, what was your sport?
Oh, yes, good healing abilty here.
I placed soccer, even with the coach from Sweden who took the American Ladies to Olympic Gold twice.
Not a long time, she was better then me. But I am certain I’ve trained much harder and longer after soccerplaying was history, then her. Still do.

(I played recreational badminton in China...they take it seriously.)
I know. I used to have some extremely tough badminton-training with a friend who was multiple World Champion. We were a few who used to try to get points against her.
Jesus, I got some, but I worked hard for it. It was fun and very sweaty though.
 

TiggrToo

macrumors 601
Aug 24, 2017
4,205
8,838
Weird and wacky head problems - between sudden onset Aphasia that occurs under light stress (although not heavy) and lasts for up to 12 hours, and a left leg that invariably has a real predilection to not want to move when I'm going upstairs, it's no wonder one neurologist wrote back to my family doctor thanking her for sending him a 'most fascinating patient'. :eek:

Apparently I'm not fascinating enough though for him to have the first clue as to what ails me though - marvelous! :rolleyes:
 
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Gutwrench

Suspended
Jan 2, 2011
4,603
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Oh, yes, good healing abilty here.
I placed soccer, even with the coach from Sweden who took the American Ladies to Olympic Gold twice.
Not a long time, she was better then me. But I am certain I’ve trained much harder and longer after soccerplaying was history, then her. Still do.

I know. I used to have some extremely tough badminton-training with a friend who was multiple World Champion. We were a few who used to try to get points against her.
Jesus, I got some, but I worked hard for it. It was fun and very sweaty though.

I only played soccer on the playground with pointy cowboy boots. I was a buzz saw out there.

I’m hooked on the World Cup. I wish the Americans could be more competitive. I am in awe in the agility and what you can do with your body, feet and a ball. Amazing.

I used to cut a lot of weight. So much so it was hard to sweat running in plastics. But a buddy (heavyweight power lifter) had a table tennis table in the basement of his home where we’d play. I’d sweat my bottom off. For a big guy he was quick as heck!
[doublepost=1529281476][/doublepost]
Weird and wacky head problems - between sudden onset Aphasia that occurs under light stress (although not heavy) and lasts for up to 12 hours, and a left leg that invariably has a real predilection to not want to move when I'm going upstairs, it's no wonder one neurologist wrote back to my family doctor thanking her for sending him a 'most fascinating patient'. :eek:

Apparently I'm not fascinating enough though for him to have the first clue as to what ails me though - marvelous! :rolleyes:

Dang, I’m sorry to read that. I struggle with short term memory. It’s a beast. I think my long term memory is fine...but friends disagree. Hahaha.
 

TiggrToo

macrumors 601
Aug 24, 2017
4,205
8,838
I only played soccer on the playground with pointy cowboy boots. I was a buzz saw out there.

I’m hooked on the World Cup. I wish the Americans could be more competitive. I am in awe in the agility and what you can do with your body, feet and a ball. Amazing.

I used to cut a lot of weight. So much so it was hard to sweat running in plastics. But a buddy (heavyweight power lifter) had a table tennis table in the basement of his home where we’d play. I’d sweat my bottom off. For a big guy he was quick as heck!
[doublepost=1529281476][/doublepost]

Dang, I’m sorry to read that. I struggle with short term memory. It’s a beast. I think my long term memory is fine...but friends disagree. Hahaha.

You know what they say, your ailments shouldn't define you, how you deal with it makes the difference. That said, the wife does get some peace and quiet when that Aphasia kicks in! (Gallows humor, if you can't laugh about it...etc...)
 
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Gutwrench

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Jan 2, 2011
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You know what they say, your ailments shouldn't define you, how you deal with it makes the difference. That said, the wife does get some peace and quiet when that Aphasia kicks in! (Gallows humor, if you can't laugh about it...etc...)

I agree. While we don’t have much control in the hand we’re dealt, we have control over how we play it! Good view TiggrToo!
 

a-m-k

macrumors 68000
Sep 3, 2009
1,546
132
I’m sorry to read this. Are they under reasonable control?
Unfortunately not at the moment. I haven't found a new Neurologist or Neurosurgeon. (My retired Doctor did both jobs.) I hope someone is found before I have to be raced into emergency surgery. If my current shunt can make it to December 29th of this year It'll be twenty-five years with this current shunt. However, I had a small tube the forked off about a half an inch off the top of the main tube replaced and then corrected in 1999. I say corrected because my Neurosurgeon had trouble putting it in correctly and he felt it would be better to keep me hospitalized and perform another operation when I was still hospitalized rather than release me only to have me come back a short time later with similar problems because the tube was crooked.
 
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elf69

macrumors 68020
Jun 2, 2016
2,333
489
Cornwall UK
Had strange conversation with my dentist....

My Dr knows nothing about my condition, CMT
My dentist reamed off loads of information about it!

Apparently my dentist likes to read about the lesser know conditions in her spare time!

Maybe I should book to see my dentist when I next have a problem, lol
 

Huntn

macrumors Core
Original poster
May 5, 2008
23,972
27,054
The Misty Mountains
Short term memory- I’ll mention it, but maybe it’s already apparent in some of my posts, but my short term memory has taken a beating of late. I just don’t remember things like I used too. My mother suffered from this. By her mid 80s her short term memory loss was significant, such as looking through a stack of bills and not being able to remember which bill she was looking for.

I am 65. In day to day life it’s most apparent in books I read and tv shows I watch. I used to read a book and at the end be able to easily describe the entire plot point by point, but no longer, I can pull up a general outline but not the specifics like I used too. It can be more serious issues like putting a pot on to boil and forgetting about it until I discover it has boiled dry. For things like this, when confronted with a dry pot, I remember that I put one on to boil, but I get wrapped up with other chores in the meantime.

The tea pot saves me, but for other items, that don’t have noisy reminders, I use a timer on my phone. I can pay bills, no problem, but I keep a written summary reference month to month to help keep track.

I just read this link, took their text and scored a 3:
https://www.helpguide.org/articles/alzheimers-dementia-aging/age-related-memory-loss.htm
Which seems to indicate I should not be overly alarmed, yet it is frustrating.

Besides that currently working on self treatment of tennis elbow, associated with swimming, and computer/tablet use.
Link 1: https://www.arthritisresearchuk.org...1TMQC1aQFBwUvloVhIad1wW1tcn2xd0saAsk3EALw_wcB

Link 2: https://www.healthline.com/health/fitness-exercise/tennis-elbow-rehab#1

I've got hydrocephalus and some sort of seizure disorder. However, I no longer have a neurologist or neurosurgeon to try to figure out what exactly the spells I get are. :( He retired and he was AWESOME!
I hope you find an adequate doctor soon! I had to read up on this. There are reports in this thread such as this which make me realize that my health issues are trivial as compared to others.
https://en.m.wikipedia.org/wiki/Hydrocephalus

[doublepost=1529329216][/doublepost]
Had strange conversation with my dentist....

My Dr knows nothing about my condition, CMT
My dentist reamed off loads of information about it!

Apparently my dentist likes to read about the lesser know conditions in her spare time!

Maybe I should book to see my dentist when I next have a problem, lol
If you mentioned this previously, my apologies, I had to look this up too.
https://www.mayoclinic.org/diseases...ie-tooth-disease/symptoms-causes/syc-20350517
I hope this is manageable.
 
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elf69

macrumors 68020
Jun 2, 2016
2,333
489
Cornwall UK
somewhat manageable yes.

been lucky until recently no real issues but now starting get pains in joints and muscles.
Always been hyper sensitive to cold and unless very hot I cannot sense heat very well.

I rely on my fiancee for hot meals as too dangerous me try cook.

lost use of both thumbs and my hands have poor grip and only about 70% mobility.

But on bright side I still hold a 9am to 5pm job.
 
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a-m-k

macrumors 68000
Sep 3, 2009
1,546
132
Thank you Huntn. I hope so too, even though, the spells I get aren't obvious to someone who is far away, but if you were a good distance away from me, you may not be able to tell. Though, if you actually knew me and knew about the spells, it could be obvious.
 
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Huntn

macrumors Core
Original poster
May 5, 2008
23,972
27,054
The Misty Mountains
somewhat manageable yes.

been lucky until recently no real issues but now starting get pains in joints and muscles.
Always been hyper sensitive to cold and unless very hot I cannot sense heat very well.

I rely on my fiancee for hot meals as too dangerous me try cook.

lost use of both thumbs and my hands have poor grip and only about 70% mobility.

But on bright side I still hold a 9am to 5pm job.
Is there medication that helps with symptoms?
 

elf69

macrumors 68020
Jun 2, 2016
2,333
489
Cornwall UK
sadly no medication, it's currently irreversible.

it's like having damaged wires in the house, only fix is rewire.
as of yet cannot rewire a human :(

can take nerve tablets to stop the nerve twitches, I have only just started get these twitches.

Was born with it so had good innings without issues so I not complaining :)

I quite an optimistic person, which is good for lorn term conditions like this!
 

AlliFlowers

macrumors 601
Jan 1, 2011
4,542
15,756
L.A. (Lower Alabama)
My toe is working perfectly fine now. But it's still a bit swollen and a bit sore, especially if I bump into something with it.
Totally recover with this toe will take its time.
So I understand that it took months for your toe after you broke it.

Toe still don't like shoes very much. Some works better then others though.
So I try to do most things barefoot, if I can.
I won't push toe into any spinning shoes this summer, I'm pretty sure of.
But running barefoot on treadmill is totally wonderful.
Why haven't I done that before?
Might take barefoot-running outside too when weather allows. Rain, rain and lots of great work anyway now, so.

Back to basic summer, getting closer to Mother Earth, again.
Nothing happens without a purpose :)

This is why there are shoes like the Vibram 5 fingers. I understand it's the next best thing to running barefoot.

Due to my neuropathy, I haven't worn regular shoes in over 5 years now. Can't wear socks either. Thank heavens I live somewhere that never gets too cold, since I wear sandals all year round. Although, I don't feel heat or cold in my toes, so it's pretty much a moot issue.

I've got hydrocephalus and some sort of seizure disorder. However, I no longer have a neurologist or neurosurgeon to try to figure out what exactly the spells I get are. :( He retired and he was AWESOME!

What are the chances of finding someone new? Even if you have to travel to another city for a good one, it would be worth it.

You know what they say, your ailments shouldn't define you, how you deal with it makes the difference. That said, the wife does get some peace and quiet when that Aphasia kicks in! (Gallows humor, if you can't laugh about it...etc...)

My family is all about gallows humor. And you absolutely cannot let your ailments define you - although taking advantage of them from time to time is quite alright. For example, I will beat any able bodied person onto an airplane!

Short term memory- I’ll mention it, but maybe it’s already apparent in some of my posts, but my short term memory has taken a beating of late. I just don’t remember things like I used too. My mother suffered from this. By her mid 80s her short term memory loss was significant, such as looking through a stack of bills and not being able to remember which bill she was looking for.

Normal part of aging, I'm afraid. My mother (84) worries a lot about losing her memory. I have to remind her that her memory was never all that great. We have wonderful conversations with missing words. We know what we mean, but neither of us can come up with the word we want. Conversations between old and chemo brain can be really funny.
 
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